Entries by Tag health

Jul 10, 2021

entries sorted by tags. (also see entries by date.)

Citizen-Sourced Data Commons
governance implications for <b>Open Science</b> more
Citizens Consent
An idea for more informed citizens based more
The City as an App
Demystifying Blockchains
you keep on using that term “blockchain.” I don’t think it means what you think it means more
Federal Data Insurance Corporation
Banking Data
A Governance Model for a Health Repo
My Hurt Locker
A Health Privacy API
Open Science in HSR
Perfect Health Repo Desiderata
Public Good v. Private Goods
The good news is that the private sector is taking over from the public agencies when it comes to innovation and investment in the medical/health domains. As such, the difficult but crucial technological advancements, especially when it comes to balancing the desire for sharing with the need for privacy, are going to come from the private sector. The bad thing is that we are already witnessing unintended side-effects to this. And the ugly part is that there will be many more undesirable consequences in the future. The necessary checks and balances—consent, governance, and reparations from harm—will have to come from the public sector, that is, both the government and the common people. more
Reading Writings
Sharing v. Privacy
While the need for privacy and security have to be respected, access to patient data is essential for continuous learning as well as for diagnosis of edge cases. But the former makes it difficult to achieve the latter creating a tension that seems intractable. A workshop organized by Creative Commons, with generous support from Robert Wood Johnson Foundation, brought together those eager to resolve this tension, and make it possible to share data while respecting privacy. more
The Three Locks
Sharing v. Privacy
While the need for privacy and security have to be respected, access to patient data is essential for continuous learning as well as for diagnosis of edge cases. But the former makes it difficult to achieve the latter creating a tension that seems intractable. A workshop organized by Creative Commons, with generous support from Robert Wood Johnson Foundation, brought together those eager to resolve this tension, and make it possible to share data while respecting privacy. more